I'm still in the game

[BonnieT]

Hi
Hang in there and God Bless !!!!!!!!!!!!!!
BonnieT

[Kim in CA]

Lyn,

Just wanted to send a big HUG your way. You have been fighting this beast a long time, and you have always been an inspiration to me. I am approaching my 9 yr. anniversary since I was first diagnosed, and I am always wondering what is going to pop up next.

I went to the dentist the other day, hadn't been since 2001. I hate going to the dentist, but that's another story! Anyway, back in 2001 when we learned the cancer had spread to my liver, I needed to have an abcessed tooth pulled before I could start my chemo. I just never put going to the dentist on the top of my priority list since then cause I think that subconciously I thought I would probably expire before my teeth ever gave out! Well, my husband finally talked me into going(because of uncertainty about insurance coverage in the future) and darned if I don't need all kinds of work! I need a root canal and 3 crowns and 2 teeth filled.

Anyway, as my dear Mom likes to say, "If I had known I was going to live this long, I would have taken better care of myself!" I now know we can live a long time, we just have to stay vigilent and keep pushing for what we need.

You are a fighter Lyn and you just keep tackleing these problems head on. You give me encouragement to do the same and I have made a New Years resolution to catch up on all the other non cancerous type check ups I need, because I plan on being here awhile longer myself!

Love Kim

[Lolly]

Well Lyn, it's "game on" again; what doesn't kill us makes us stronger as they say, so you are indeed a SUPER-WOMAN!
I wonder if it isn't time to "revisit" some of the chemos that have been successful for you in the past?
Anyway, sending BIG HUGS your way, and lots of positive thinking.

<3 Lolly

[Lisa]

Boy, Lyn, can I empathize with you. As you said about NED, we oldtimers know better. When I got my scans back last week and everything was back, I felt like I'd been riding a stationary bike for the past 2.5 years. All that treatment, all those chemos, and it's all back. But I guess, since this all started in 1999, I'd best be grateful that I'm still here. (I had a "blubber", too.)

Pull up your knickers and let's get back in the ring!

Love and light,

Lisa

[Lyn]

Thanks gang, I made an executive decision today, that's what I like to call it, and decided that this THING!!!!! is just another chronic illness managed by medication and there is no reason why I can't make plans for the future and carry on as normal. How does that sound? Strange though this morning my blood levels must have been low from the oral chemo, I tried to get up, I even told myself I should get up, but I couldn't summon the energy, then this devil in me said, hang on a minute you are supposed to have cancer and that is what you do, if you don't want to get up you don't, I milked it for all it was worth and kept getting cups of tea in bed finally decided at 1.00 it was time I better better get up and feed my fish, I am trying to get a grip on life and had a nice cold glass of beer this evening, I don't usually drink anything, I figure I have enough toxins in me with out self inflicting, but I have to live and that is what I plan to do, LIVE. My darling older sister has been creating a prothesis for me that will stick into a bra with valcro, not sure if you call it that anywhere else but it is little patches that cling together. I have such a large mastectomy wound it is hard to wear normal prothesis, eventhough they are light weight they are still heavy and especilly with my fractured shoulders. I haven't seen it yet but she is very pleased with the result, she has modified the bra as she had to add extra lace at the cleavage to hide the hollow area on my chest, so I can't wait to see it, it only weight a couple of 100 grams, I have been wearing singlets with dacron pin in forms, but they never stay in the right place and I was never one not to wear a bra so I am looking forward to that as well, my reconstruction is definately on the back burner, I have to wait for stable disease, how do you define stable? Any way guys , here we go again.


Love & Hugs to all.

[Lyn]

Hi, I Think I forgot to mention my CA 15-3 tumour marker was 9, it seems with me they must be false negatives, the higher the marker the less disease I have. Thought I would share.


Love & Hugs Lyn