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we love you Tricia
Hi Tricia,
It's so great to hear from you on a regular basis.
I agree with you 100% but wonder if your situation can't be resolved with a fearless onc. I personally feel that they should open many of these investigational drugs to any re-occurring stage 4's. Or, how about a policy statement for stage 4's who don't qualify for trials. It takes some courage on the part of the FDA but it is required as endorsement for insurance coverages. To be honest, I just don't get it! I am running into the same situation with Linda. Here's a case where a drug is approved for colerectal cancer (avastin), which would more than likely help my wife profoundly but because she has BC, the hospitals won't get funding from the province soooo... we have to find the $50,000 + per year. Let's call it "the last horrah act".
Still bitter and twisted but appreciatively yours,
Al
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Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
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