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Old 12-24-2005, 09:41 AM   #1
Lolly
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Join Date: Aug 2001
Location: Oregon
Posts: 1,756
As a long time Herceptin user I have had the achey joints, especially hips, since starting. It did ease up after the first year, but whenever the weather changes flares up again. Bone scans are negative for mets, but indicate arthritis. My personal theory is that the immune system is activated by the Herceptin antibodies, which causes the aches and pains we normally associate with flu or cold symptoms. But one should always bring these symptoms to the attention of their doctor, as they need to track all of this and order appropriate scans if necessary.

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Old 12-24-2005, 10:59 AM   #2
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I started herceptin in June and have certainly noticed more generlized ahcyness but particularly in my hands, deifinitely my hips, elbows and to a lesser degree my knees. I am not on Tamoxifen or AI's . I was blaming it all on the post- chemo sydrome esp. Taxol, but I've been almost a year and a half out of standard chemo.
HMMMMM-- very interesting.
I recently joined a gym , go to aerobics, walk, swim, use the nautilus to keep things loose and toned but some days I just want to sit in the hot tub !!
Carol
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Old 12-24-2005, 10:59 AM   #3
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I started herceptin in June and have certainly noticed more generlized ahcyness but particularly in my hands, deifinitely my hips, elbows and to a lesser degree my knees. I am not on Tamoxifen or AI's . I was blaming it all on the post- chemo sydrome esp. Taxol, but I've been almost a year and a half out of standard chemo.
HMMMMM-- very interesting.
I recently joined a gym , go to aerobics, walk, swim, use the nautilus to keep things loose and toned but some days I just want to sit in the hot tub !!
Carol
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