brain mets - 2nd mri not good

Joe · 12-15-2005, 05:47 AM

A second opinion is definately in order, your consultation with the people at Mayo is a wise decision. Christine, the founder of this website, had a similar situation about 5 years ago, here is her story: http://www.her2support.org/story2.htm

Neucrosis means that the tumor is dying, which may be happening in your situation. Send your phone number to: joe@her2support.org , I will have Christine call you as she is very knowledgeable in this area.

Warmest Regards
Joe

Annemarie · 12-15-2005, 08:59 PM

Joe and Christine always give such great advice! I had gamma knife 14 mos. ago. Recent brain MRI's have showed what could be a reoccurant brain tumor in the same area. The orginal brain met was 7mm. Additional tests indicate that it is just scar tissue. Because the Drs. are not certain I now go every 8 weeks for brain MRI's. My last MRI this past week showed less edema so my neurosurgeon was very happy!

12-16-2005, 02:19 PM

The web address for the cyberknife support group is

http://www.cyberknifesupport.org/

You go to the message boards, pick out the BRAIN topic and you can post after you have registered. There are physicians who specialize in this who can help answer questions.