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Old 11-02-2005, 08:19 PM   #1
Lori
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Talking

Very cute story.

I have had some experiences with the 7th graders that I teach.
Recently, they saw a picture of me from last year (prior to hair loss). Many of them came up to me afterwards and said, "I didn't know that you had hair!" ....

Today I went without a scarf for the first time. My hair is only about an inch long, so I was a little nervous. They were so sweet, many told me how pretty I looked. Even a few boys told me they liked my hair.

Final story...my son is just turned three when my hair fell out. His first words after seeing me without hair, "Mommy, you are a boy now!" It took a lot of explaining about boy and girl parts before he would stop calling me a boy. Then my new name was "Baldie"....it's a good thing he is cute.
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Old 11-03-2005, 02:34 AM   #2
RhondaH
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Smile I LOVE these stories

My 4 yo Tony was just as curious (loved to pull my hair out when it was coming out in clumps) and while it's hard for them to understand, they take such a "complicated issue" and make it so simple. Take care.

Rhonda Hoffman
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Old 11-03-2005, 05:23 AM   #3
IRENE FROM TAMPA
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Smile Children - How Refreshing

Ladies - your stories of these children just made my morning.

"from the mouths of babes" was not exaggerated - how wonderful to view/accept life so simply. I love it. We can certainly learn alot from these little short people.

Take care
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Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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Old 11-03-2005, 10:06 AM   #4
Rozebud
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Very cute. My 21 month old and 3 1/2 year old don't even remember. I asked the 3 y.o. if she remembers when mommy had cancer and she said no. I said "mommy had cancer and she took medicine, and all her hair fell out, but now she's much better." And she said "Oh....did you put the medicine on your head to make your hair fall out???"
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Dx'd 1/04 at 33, while 33 weeks pregnant

Dx: Stage IIIC IDC, ER-, PR+ (23%), Her2=2.7 (IDC)/7.6 (FSH), 2.5cm primary tumor, grade III, 11/18+ nodes (largest 3.8 cm)

Treatment: A/C *4, T *4, 1 year of herceptin (BCIRG 006), mastectomy, rads (7 weeks), zoladex (5 years) with tamoxifen (2 years)/aromisin (3 years), bilateral SGAP summer 05 at NOLA

Oops, retested tumor and I guess I'm er/pr- after all.
Stopped all hormonal tx 10/07. Periods resumed 6/08. Bye bye hot flashes!!!!

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