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To JoJo
Hi JoJo,
I'm on Navelbine/Herceptin for the third time since 2001; each regimen has been 6 months long. First time, complete response, then Herceptin alone until second recurrence in April 2004. Navelbine added again for another 6 months, and had a good response but still had one enlarged node which has been stable since then. I had progression to axilla nodes confirmed last month and again added Navelbine which so far has stabilized things with symptoms abating and some small shrinkage. But, we're thinking that the cancer is finally becoming somewhat resistant to Navelbine, although not completely, and my onc wants to add Xeloda to give it an extra one-two punch. Navelbine has been very easy for me to tolerate and I've had great results from it. Hair thins somewhat and have stomach issues (I get IV anti-nausea drugs at treatment and have pills at home if I need them).The main side effect is low blood counts, last time I did have to start Arenesp shots about halfway through for red blood cells; the low white cell count we manage by cutting the dose in half when the white counts are below 1200. So far have only had one dose cut.
Hope this helps, keep us posted!
<3,
Lolly
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