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Kim... I'm glad I could be of some small help. I can't tell you how much research I've done over the past three years!!!
The growth rate of brain mets is variable as well.... just as in all other types of mets.
The Navelbine/Herceptin was my first and only line of treatment for my mediastinal mets, spot on lung and spot on pelvis.
And yes, I mean NED in body only and do not count my brain mets in that NED state.
Also fyi: my first dx was 12/99 Stage IIIb, Inflammatory and Invasive with two tumors, 6 of 26 nodes positive. Dx of mets 7/'02 two and a half yrs post original dx.
hugs,
pattyz
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