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Hi Michele,
Why don't you request herceptin "off-label" for another year. There are suppliments that down-grade HER2, specifically oleic acid (from olive and flax oils) which I would be taking. It's a tough decision but I would consider researching if there is any evidence that would support having a prophylactic bilateral mastectomy as a anti-cancer in any cases like yours. We know that there was no clinical benefit to having a mastectomy in the first place soooo, why have things changed?
Life after breast cancer is something we really don't deal with on this Board, but I know there are books out there on the subject.
Good Luck,
Al
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