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Old 04-14-2004, 06:43 AM   #1
Sandy
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This can be very confusing. Each one of us is different. I had a bight red, itchy, burning rash which started from 2 spots near the scar line and extended over most of my chest. Then I started with nodules at the end of the scar line working its way up the scar. This happened during the time I was trying the Herceptin/Navelbine (6 treatments ) then Xeloda for 2 cycles, Miltex for 12 weeks. This covered a period from May to Dec. and the rash was getting worse. We know the first 2 treatment combos didn't work and the Miltex (topical solution from Germany) we think slowed it down but it had progressed too far. I went on Herceptin, Taxol and Carbo and after 2 cycles of a total of 12 weekly treatments it was all gone with clean biopsies! Its a matter of getting the right combo to work. Of these combos the last one that worked was the best for me to tolerate with the least side effects. I don't know about surgery to remove these I know radiation doesn't work perhaps, some have had good luck with it but then everything needs to be burned to the bone!. I wish you good luck in what ever you decide to do. This was my second recurrence for skin mets. My last bone and cat scan was clean so I was dealing only with the skin mets which means its in the lymphatic tissue. Its such a guessing game once we have done the protocol to find the right combo. You will be in my prayers. Hugs, Sandy
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