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Old 02-20-2017, 05:24 AM   #1
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: 8 Years

congratulations Estelle.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 02-20-2017, 08:44 AM   #2
eefreeman99
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Join Date: Feb 2017
Posts: 3
Re: 8 Years

Hi Estelle my name is also Estelle. I am just starting the recovery road. Completed 6 rounds of chemo. Preparing for surgery next month. Opted for double mastectomy. I too have peripheral neuropathy in my hands wasvhopin that would subside. Your story was very inspirational for me and you have a great name! I am doing the Avon 39 walk in Setember!
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Old 02-21-2017, 03:25 PM   #3
Estelle
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Join Date: Nov 2009
Posts: 72
Re: 8 Years

Hi Estelle -- eefreeman99! Its really unusual to meet someone with our name! I wish you all the best! Walking the Avon is a good way to stay motivated, and when needed, distracted. You will meet many warriors and really feel empowered by so many strong women! My walk is in May - started training last week. I will check back from time to time to see how you are doing. Re neuropathy -- don't know where you are located but there are several clinical trials. I wasn't successful but some seem to work better when done closer in time to when the nerves were damaged. My first treatments were some years after I finished taxol. If you go to clinical trial.gov, and put in CIPN (chemotherapy induced peripheral neuropathy), you will get a list of trials and you may find something that works for you. Good luck!Hi Estelle -- Its really unusual to meet someone with my name! I wish you all the best! Walking the Avon is a good way to stay motivated, and when needed, distracted. You will meet many warriors and really feel empowered by so many strong women! My walk is in May - started training last week. I will check back from time to time to see how you are doing. Re neuropathy -- don't know where you are located but there are several clinical trials. I wasn't successful but some seem to work better when done closer in time to when the nerves were damaged. My first treatments were some years after I finished taxol. If you go to clinical trial.gov, and put in CIPN (chemotherapy induced peripheral neuropathy), you will get a list of trials and you may find something that works for you. Good luck!
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Estelle
DX 1/09
two tumors; .7 cm and 1.0 cm, same duct
lumpectomy 2/09
10 positive nodes; scans show no further metastasis, Stage IIIc
AC completed 5/09
Tykerb/Taxol (trial) 6/09, terminated from trial (due to bad reaction to Tykerb) 8/09; switched to Herceptin/Taxol
Taxol finished 10/09
Bilateral mastectomy 11/09
Radiation 12/09 to 1/10
Herceptin finished 7/10
NED
Start Vaccine Trial at Hopkins 2/11
Finished Vaccine Trial 11/11
Continue NED
Port Out 11/11
DEIP Flap 4/17)
8 Years NED 2/17
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