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Old 02-02-2016, 03:48 PM   #12
agness
Senior Member
 
Join Date: Aug 2014
Location: Seattle, WA
Posts: 285
Re: why is there no test for cumulative radiation

I hear you and with early stage or systemic disease that might be reasonable. In my case it isn't like an extra scan is going to stop us from needing to see what is going on, we won't say she's had enough radiation exposure so let's hold off.

I have noticed that all of the therapies are fairly one-size fits all. Chemo they adjust for body weight or sometimes change because of side effects but not so often. Radiation seems to be even less flexible. My naturopathic onc did his residency in radiation oncology so he had some better insight into the discipline. He said some studies have shown that even when the skin reacts badly that some cancer cells can survive and the dosages are set to try to cause maximum cancer-killing with the treatment. The problem is that my cancer or your cancer might be more susceptible to rads than someone else's cancer and so these standard dosages might be total overkill in us.
__________________
  • Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall.
  • Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy.
  • 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED.
  • 10/27/15 atypical uptake in right cerebellum - inflammation?
  • 12/1/15 Leptomeningeal dx. Starting IT Herceptin.
  • 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly
  • 3/2016 - stable scan
  • 5/2016 stable scan
  • 7/2016 pseudoprogression?
  • 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT
  • 11/2016 Cyberknife to temporal lobe, HBOT just prior
  • 12/2016 - lesions starting to show shrinkage
  • 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone.
  • Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing.
  • Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.
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