HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 02-01-2016, 07:42 PM   #1
Carol Ann
Senior Member
 
Join Date: Dec 2013
Posts: 1,045
Re: I think I'm in trouble!

Sounds like you are getting a solid plan in place! Thanks for the update. Thanks too for participating in the vaccine trial. Hoping someday soon a vaccine is available for all of us!

Carol Ann
__________________
July 24, 2013: "Infected" Right Nipple and benign cyst removed, pathology report revealed Paget's, DCIS, and ILC 1.25 cm, ER+/Pro+/HER2 equivocal, Grade 2 under benign cyst, previous diagnostic mammo/ultrasound said I was perfectly healthy in both breasts.

Aug 18, 2013: MRI report says Left breast is perfectly healthy "consistent with previous studies".

Sept 2013: I insist on a bilateral mastectomy anyway. Too nervewracking to let left breast remain with higher risk after 3 cancers in right, nipple in right is already gone anyhow.

Sept 18, 2013: Bilateral mastectomy, 11 right nodes removed, ALL negative BUT -- ER+/PRO+/HER2+ tumor, 1.0 cm, Grade 2 found in a piece of "grossly unremarkable" breast tissue from prophylactic mastectomy of left breast, no nodes removed.

Oct 25, 2013: 13 left side nodes removed, ALL negative, Stage 1 across the board, NO RADS needed, YAAAAY! Port also installed.

Nov 25, 2013 Begin 6 rounds TCH.

March 10, 2014 Just finished 6th and LAST Chemo today, YAAAAAY!

March 24, 2014 Echocardiogram to make sure I'm still good for Herceptin every 3 weeks.

March 31, 2014 Echo results NORMAL, first Herceptin all by itself. Now if only my eyes would stop streaming from the Taxotere ... :)

April 21, 2014 Started Arimidex and therapy for "mild" lymphedema in left hand and arm

May 2014 Therapy completed, I have sleeves and gloves for both arms, a Flexi touch lymph pump to hook up to for an hour every day, and I've become an arm bandaging expert. :)

June 2014 Begin Fosamax to prevent osteoporosis; bone scan revealed osteopenia

Nov 17, 2014 FINAL Herceptin!

Dec 4, 2014 My right thigh muscle has been extra achy for days ... I discover a blister rash cluster on the side of my right thigh while taking a shower. Port appointment cancelled until Dec 17, my doc is working me in tomorrow afternoon to see me and the rash. My muscle at least feels less achy.

Dec 5, 2014 Yep, I have shingles. Boo! I start acyclovir and also have a prescription for a painkiller just in case for over the weekend.

Dec 17, 2014 Port is OUT!

January 2016 Shingles again and this time it started where my left breast (where the hidden HER2+++ tumor was!) used to be. My onc nurse got me a same day appointment to see my doc when I called and told her I had a rash on the site. The antiviral meds are working once again, though, so that is good news. :)
Carol Ann is offline   Reply With Quote
Old 02-03-2016, 08:44 PM   #2
VDC
Senior Member
 
Join Date: Jan 2016
Posts: 122
Re: I think I'm in trouble!

I fly out to Mayo tomorrow morning at 5:40 am! Friday will be testing....diagnostic mammo and ultrasound. Monday will be appointments with my assigned oncologist, the medical oncologist and the surgeon. We will fly back home on Tuesday. I should know more after this weekend. At least things are moving forward.

I also received a phone call from the clinical trial but I missed it and she asked for me to call back. I will attempt to do so during my layover tomorrow. Very much wondering what she has to say....yea or nae?
VDC is offline   Reply With Quote
Old 02-07-2016, 09:15 AM   #3
VDC
Senior Member
 
Join Date: Jan 2016
Posts: 122
Re: I think I'm in trouble!

Had diagnostic mammo on Friday and didn't see any new calcifications. The ultrasound had been cancelled as "unnecessary" but I put up a fuss and demanded one be done. Under the ultrasound found two lesions one of which is "concerning" and am now scheduled for TWO ultrasound guided biopsies on Monday. The "concerning" lesion is in a different place in the breast. Need less to say I'm a little stressed, especially since when I had the first stereotactic biopsy back in October, I developed a HUGE hematoma measuring 3.5 in x 1.5 in x 1.5 inches. That sucker hurt!

So, I'm not only worried about the likelyhood of invasive cancer in a different portion of my breast but I am also concerned about the biopsy itself.

The most concerning (and stressful) part of this is that I have constant pain from the previous biopsies. I mean constant and I take ibuprofen three times a day just to deal with it (yes I know not to take it before biopsy). I really thought the pain was invasive cancer, but the mammo and ultrasound says otherwise. The pain is not located in the area of the lesions and I was told that the pain must be as a result of the previous biopsies. I do have a history of pain after insults to my body! When I had my hysterectomy I developed a "rare but known" reaction and I have constant pain as a result....even these 7 years later. Isn't this just great? Imagine what a mastectomy would do to my pain level? Really afraid of the pain. I'm actually not as afraid of the cancer as I am of the pain!
VDC is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 12:36 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter