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Old 11-03-2015, 01:10 PM   #1
Juls
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Re: The power of words

Andi - It is so frustrating that everyone jumps immediately to cancer . My Onc decided at one appt last year that a mark on my back was cancer. The reason - she thought it looked better! Had to tell her that I had CT and MRI reports saying otherwise. Now I'm not saying tests are always 100% but would think that numerous CT's and MRI's over previous 2 years might be considered. Can't say I was very pleased that day! Funnily enough never been mentioned again!! Once again comes back to "words".
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Old 11-03-2015, 02:15 PM   #2
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Re: The power of words

I think they'll all busy covering their arses. Over-reacting, IMHO, to everything.

I'm 20 yrs out and it's not stopping.

When they found nodes in my thyroid area after that endocrin lady got all upset, she then wanted to biopsy. I said, No. She said, I don't understand, you're so vigilant about the rest of your body......

I told her, I DO NOT HAVE CANCER. I am fine. I am not biopsying everything they find. My blood #s are NOT alarming, b/c I checked and that is my norm!

Did go to another endocrin man (through cardiologist, long story) who is excellent, only does surgery but agreed to see me b/c he's a friend of my cardio guy. He happened to have a fellow w/him. He looked at each one of my apparently many nodes and explained each one to him, and me. See blah blah, that is nothing. See blah, blah, b/c whatever that is most likely benign and on he went, telling me at the end, not to worry. My blood #s were low but in normal range and all my nodes are nothing to be concerned about.

He told me to keep my immune system up, hearing my cancer background, which I do, with my supplements. He told me keep the inflammation down, which I do and don't let fear make me sick.

I liked this doc. He made sense, was well-informed, obviously bright and had a clear view of me as a person, not a thyroid or a cancer survivor.
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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