 |
10-04-2014, 08:34 AM
|
#1
|
|
Senior Member
Join Date: Jul 2014
Posts: 27
|
Trip before double mx -
So Wednesday was my last chemo do to neuropathy concerns. Surgery is scheduled for Nov 13th.
My husband and I are thinking about taking a trip to NY the weekend before. It's 5 weeks after my last chemo. My friends think it's too risky. I've yet to get sick knock on wood and my counts should just get better right?
I feel like we should take this weekend as to be honest our intimate life will never be the same. We will recover and it will be fine but it will be different and we will have lots of emotions and changes we will work though.
Our anniversary is in December and we won't be able to celebrate that as I will be recovering. Thanksgiving and Christmas are our favorite times of the year.
Anyone have any thoughts or reasons why traveling would be bad? I'm 41 and in great health so to speak. If it were not for the stupid neuropathy chemo would not have been hard on me at all. So I feel it would be ok.
__________________
Eva
Age 41: IDC Stage 2B - Left Breast Only
Two tumors 4.5 CM & 2 CM, 2 Nodes Positive
ER/PR Negative, Her2 Positive, Ki-67-80%
DX - Early May 2014, MD Anderson
A/C X4 Chemo Started May 28, 2014 - Done!
Ultrasound after A/C shows small tumor gone, Nodes Clear!
Taxol x 12 Weeks - Halfway Done!
Herceptin & Perjeta X 4 With Taxol - Halfway Done!
Herceptin X 9 months every 3 weeks after surgery
Double Mastectomy w/ Tissue Exp 11/15/14
Will wait for pathology report to determine rads! Hopefully not!
|
|
|
|
10-04-2014, 09:02 AM
|
#2
|
|
Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
|
Re: Trip before double mx -
I say Go For It!!! We have to celebrate as often as possible with those we love!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
|
|
|
|
|
10-04-2014, 10:28 AM
|
#3
|
|
Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
|
Re: Trip before double mx -
I agree, go for it! Have fun.
love sarah
__________________
|
|
|
|
|
10-04-2014, 05:34 PM
|
#4
|
|
Senior Member
Join Date: Feb 2013
Location: Lincoln, NE
Posts: 265
|
Re: Trip before double mx -
Eva...after I had read about your problems with your neuropathy, severe itching, walking, etc on another one of your posts...my heart truly ached for you...we each experience our own journey of aches & pains...however, just wanted you to know I was sending prayers your way...SOOOOO GO ENJOY YOURSELF ON A WONDERFUL TRIP WITH YOUR HUBBY!!!
__________________
10/18/12 Found pea size lump right breast
11/7/12 Biopsy
12/14/12 Lumpectomy
1/4/13 Rexcision, NO CLEAR MARGINS!! :(
2/11/13 Mastectomy with Expander Placed
2/15/13 INFECTION at Mastectomy site...emergency Surgery!!! Expander removed :(
DX: DCIS, IDC, Stage 2a, 2.7cm, 1/5 nodes positive
ER/PR-, HER2+++
3/28/13 Port placed
4/1/13 Begin 6 Cycles TCH Therapy
4/1/14 Finished Herceptin!!
|
|
|
|
|
10-04-2014, 09:14 PM
|
#5
|
|
Senior Member
Join Date: Feb 2014
Location: California
Posts: 440
|
Re: Trip before double mx -
I say you go for it!!!! Enjoy this time. After I finished my last chemo hubby and I took off for a few days to visit family and I'm glad we did!!!!
__________________
]11/13 Dx IDC left breast
11/19/2013 Inflammatory Breast Cancer stage 3c grade 2 Er- Pr- her2+++
Node involvement suspected based on CT
12/13 port placed
12/13 neoadjuvant DD AC xs 4 rounds started
02/14 taxol/herceptin started every week xs 12 rounds
Herceptin for 1 year
Ki67=23%
BRCA1&2 negative
5/06/14 last round taxol/herceptin. Chemo done!!!
5/07/14 clear CT scan
6/11/14 Bilateral Mastectomy Done
6/15/14 8mm tumor post chemo. Removed by bmx
6/15/14 lymph nodes 0/9
6/15/14 officially Cancer Free
7/11/14 emergency surgery to left breast . Wound refused to heal and broke open. New TE placed
7/28/14 emergency medical procedure now to right breast( post op 6 weeks mastectomy ) wound opens.
8/25/14 - 10/07/14 Radiation
11/24/14 CT of Brain clear
01/23/15 One year Herceptin Complete
02/04/15 Diep done
5/01/15 1 year Ct scan- mass in thymus
6/23/15 repeat CT mass in thymus still present
6/30/15 biopsy thymus 7/03/15 mass Benign! Diagnoses Thymic hyperplasia rebound ( chemo at fault, no long term health effects)
7/08/15 phase 2 diep
11/23/15 phase 2b ( reconstructive surgery with lipo)
03/05/18 Vinnie Myer 3 D nipple tattoos complete.
11/19/2018 5 years since Dx of IBC stage 3c remain NED.
11/19/21- 8 years today I officially remain NED and in 12 days I will be having a lymphnode transfer to help decrease some mild lymphedema! Still working, living life and soon to see a day I thought never would happen and that’s becoming a grandparent June 22nd.
11/19/2023 - 10 years since diagnosis and I remain NED
|
|
|
|
|
10-05-2014, 07:23 AM
|
#6
|
|
Senior Member
Join Date: Nov 2011
Location: Las Cruces, NM
Posts: 103
|
Re: Trip before double mx -
I say go and enjoy! I went on a cruise after 2 TCH treatments (with my oncologist's ok) and did fine. Just remember to rest when your body says REST.
__________________
Helen
dx 10-31-11
Stage 1 Grade 3 (7mm tumor)
Lumpectomy 11-18-11
Er- Pr- Her2+++
0/5 nodes - no positive lymph nodes
Port installed 1-6-12
6 Rounds TCH
Rad. 33 tx
Last herceptin 12-10-12
Port removed 1-3-13
|
|
|
|
|
10-05-2014, 11:59 AM
|
#7
|
|
Senior Member
Join Date: Oct 2012
Posts: 646
|
Re: Trip before double mx -
Go for it - I went to Malaysia 8 weeks after chemo and 2 days after radiation was complete. Onc's approval, too.
Have fun, I love NY
Best
Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
|
|
|
|
|
10-05-2014, 12:26 PM
|
#8
|
|
Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
|
Re: Trip before double mx -
Wash your hands often and gargle with salt water (with a pinch of baking soda) 4 times a day just like when you're undergoing chemo ... (Just on the safe side - as a cold would not show symptoms until 3 days later)
Enjoy your trip. (Moving around is actually good for resolving neuropathy as the nerves will get connected with more 'sparks' - seriously, I'm not kidding!)
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 10-05-2014 at 12:31 PM..
|
|
|
|
|
10-05-2014, 03:20 PM
|
#9
|
|
Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
|
Re: Trip before double mx -
Go, go go. Have a fabulous time.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
|
|
|
|
|
10-07-2014, 08:24 PM
|
#10
|
|
Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
|
Re: Trip before double mx -
Absolutely go and have a fabulous time!
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
|
|
|
|
|
10-07-2014, 10:05 PM
|
#11
|
|
Senior Member
Join Date: Mar 2014
Posts: 44
|
Re: Trip before double mx -
I agree that you should go on your trip and have fun you are probably overdue for some fun and pampering!
__________________
Laurie in Idaho
IDC, Her2+++, PR- ER- diagnosed Feb 2014 1 month before 53rd bday
2.6 cm mass right breast with lymph node involvement
THP-FEC neoadjuvant chemo regimen
THP (taxotere, Herceptin, perjcta) every 3 weeks for 4 doses started 3/27/14
BRCA negative
bilateral mastectomy with lymph node dissection done June 2014 15 lymph nodes removed all negative for cancer, breast tumor gone
FEC (5-FU, epriubicin, Cytoxan) every 3 weeks for 4 doses, Herceptin every 3 weeks for a year, then
radiation for 6 weeks
New Years Eve 2014 completed radiation
September 2015 Latissimus Dorsi Flap reconstruction
March 2016 rib fractures under implant
|
|
|
|
|
10-20-2014, 08:13 PM
|
#12
|
|
Senior Member
Join Date: Jun 2007
Posts: 2,210
|
Re: Trip before double mx -
Your friends don't know Cancer survivors the way WE know cancer survivors! By all means GO! Go everywhere every chance you get
And even though you may need to let other people do Thanksgiving while you are waited on I bet you'll be good for the Christmas holidays Just pace yourself and do those things that are most meaningful to you
Keep the faith
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
|
|
|
|
|
10-20-2014, 09:15 PM
|
#13
|
|
Senior Member
Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 494
|
Re: Trip before double mx -
Go for it, Eva, and have a wonderful time! (I am a great fan of the idea of making hay while the sun shines!)
Best wishes.... Pam
__________________
Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
|
|
|
|
| Thread Tools |
|
|
| Display Modes |
 Linear Mode
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 11:03 PM.
|
