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Old 09-14-2014, 05:52 PM   #10
RedHen
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Join Date: Jan 2014
Posts: 109
Re: Mild Lymphedema

To LymphActivist: When does your wife wear a compression sleeve? Or does she rely on the bandage exclusively? I've been told to wear a sleeve during the day, regardless of what I was doing, and to bandage at night. If you have a source of information that I could tap into, I would very much appreciate the direction. I've learned more from your posts than from any other source so far - including the therapists. I knew there had to be a theory behind moving the fluid, and I've made a few discoveries on my own, but my arms never look the same. I've been lucky so far in that the swelling has not been too great, but I feel I should be able to do more. One of the places I went, which was at the hospital where I had my surgery, they relied mostly on pumps. My feeling was that this was ineffectual and mainly for show. As soon as my insurance ran out, I was pronounced "cured" or whatever though there had been no real change.
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Bilateral mastectomy w/sentinel node biopsies, December 20, 2013
12 nodes positive; stage IIIb
Began chemo January 21, 2014

Priors:
Partial colectomy, January 1996
Radical colectomy, March 1996
Crohn's & GERD
Gluten sensitivity
Chronic anemia from GI bleeding
Relapsing polychondritis w/tracheomalacia and neuropathy in feet
Vasculitis
Sjogren's syndrome
Rosacea and ocular rosacea
Hypertension
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