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Old 08-23-2014, 05:17 PM   #1
suzan w
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Location: Naples FL
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Re: Side effects question

Severe joint pain here...my stats in my signature. Also had neulasta shots prior to chemo.
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 08-27-2014, 10:57 AM   #2
CLD14
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Posts: 16
Re: Side effects question

Hi Susan...I have a few infusions of Herceptin iremaining ...just switched to the 3 wk. dose beginning of June......and have just begun taking Arimidex...what I notice is that some joint pain ... but not bad...I already had arthritis in spine, knees...that was not horrible...and have not taken anything really...I now am thinking I will try ibuprofen is needed. I feel the Herceptin has delayed my mouth /taste, etc. from recouping? I finished chemo last Dec. Since beginning Arimidex my mouth has gotten worse:/ I truly don't even want to think of food...no matter what I try it is the same "taste" and even when not eating... but I do eat and have made myself...keep a health diet...I go clean my mouth when done...and try to distract myself...I also have neuropathy as a result of Taxol... no improvement from it as of yet. I am taking L-glutamine/as per oncologist/daily. What a journey !
thank you for any thoughts you may have.
CLD
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