HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-11-2014, 07:23 PM   #8
lkc Gumby
Senior Member
 
lkc Gumby's Avatar
 
Join Date: Feb 2006
Posts: 437
Re: Nine years her2 positive !!!!

Thank you all for your kind words.
Lani, My mother did not have "her 2 testing" she recurred after 20 years; massive mets to liver, a liver biopsy was not an option. Our familial hx is interesting as all females on my mothers side dec'd from BC. However not being Brac A positive and assessing other cases like mine it is felt bymyself, and concurred with my fellow researchers that there is most definitely another mutation out there. For that matter it may be a number of mutations that have not been definitively identified yet (and Yes Fox P 3 may be one) The very incorrect assumption is that if one tests neg for Brcca 1 or Brcca 2 they do not have a "hereditary mutation". Not true...We just don't know what those genetic mutations are yet.
Rest assured though, Most Clinical trials have a subset of genetic profiling components, so as we "speak" data is being accumulated to identify these genetic mutations. Once ID'ed Targeted tx is right behind.
There is however so many variables considering one's genetic make up and response to tx.
I am privileged and honored to be working in this field and honestly feel there is much hope with new txs and ongoing research for BC and particularly her2 dx.
__________________
Linda

Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
lkc Gumby is offline   Reply With Quote
 

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 09:07 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2026, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter