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Old 06-04-2014, 10:41 AM   #1
BonnieR
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Re: Mild Lymphedema

Europa, I have very mild Lymphedema too. It can be affected by hot weather and sun exposure. Once I got a bit of sunburn and it caused my arm to react. We need to avoid hot tubs or saunas too
Periodically I would wear a sleeve when my arm started feeling "funny" or heavy. But almost never now. Unless flying. If I remember
I agree with the others that you should seek out a professional. You could do more damage if not massaged correctly
Good luck. Keep the fsith
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 06-08-2014, 07:23 PM   #2
RedHen
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Re: Mild Lymphedema

Hi - I have lymphedema and just finished a course of treatment with a certified LE therapist. I bandage at night, wear a sleeve in the daytime and do exercises and self massage every day. I'm sure everything has helped, but the swelling has not gone away or decreased very much. I'm currently undergoing radiation that may make things worse, so I'm being very careful about the care of my arm and diligent about exercise and massage. At this point, I'll be glad if I can keep the size of my arm from increasing from its present dimensions. My expectations have been lowered, and that's disappointing, but I'm grateful that it hasn't gotten worse - so far.

One thing I have learned from experience and research is that much more research is needed in this area. It's hard to find anyone, including doctors, who is genuinely knowledgeable on the subject. There's a lot of misinformation out there.

Best wishes. Lynne
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Last edited by RedHen; 06-09-2014 at 07:35 AM.. Reason: correction
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