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Re: Who's her2 and lobular...??
Hi Caroline,
So weird. I went for mammo last Tues (20th). mammo good.
i also get sono cause lobular hides and i am hyper vigilant.
had ct scans (chest/abdom/pelv) in June. chest was stable. abdom another story. surg for mesentery mass mess and -- benign.
in sono for breast, the only remaining breast, what was a dot last yr, is now a bit larger. a change. given my medical history..... blah, blah...
needle biopsy last thurs, they squeezed me in. never had that. don't wish to have another. ever. but not that bad. meh...
biopsy should be back monday, yesterday, or tuesday. i have not been called.
i am waiting. i got through weekend. i even got through yesterday. woke up this morning and can think of nothing else.
have made 3 calls. left messages. last message i left explained that i had reached the point of feeling alarmed. please call me back.
last message i left was @ 230.
i am officially puzzled and worried.
will let y'all know when i know, which better be soon, before i have a nervous breakdown...
i keep going back to '98, and '95 and cannot imagine returning to all that again.
appreciate everyone's concern. i feel supported... my sister, my husband, my dghtr have tried to be patient, but are now anxious... what in the world????
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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