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Old 08-14-2013, 11:47 PM   #3
Pamelamary
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Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 494
Re: How many progress to Stage IV?

Thanks "lizbeth, but i think the link has been mixed up - not relevant.....
As a Stage IV person myself, I have learned a few lessons about the unimportance of statistics to an individual. However as a group here in Australia, I think ABC women are marginalised and relegated to being the elephants in a pink bedecked room.
I have an opportunity to talk to a group of trainee peer support volunteers and would like to make them aware of our significance - maybe a bit confronting, but a much needed reality check?
If you have the stats, I would be most grateful.
Regards..... Pam
__________________
Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
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