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Old 07-02-2013, 02:12 PM   #24
NEDenise
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Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Re: I love being unique... Usually :-)

Amanda,
I'm with you...the news could have been much worse...
But criminy! Aren't you due for some "best news anyone's ever had"!?! Where is the justice in this world?! I will definitely be expressing my displeasure when God and I discuss this!

I have to say though, I'm impressed with your 'I can do this' attitude! Of course, you have extraordinarily good reasons to fight like hell and beat this...again...your wonderful hubby and beautiful kids! But still...kudos for not letting disappointing news drag you down.

And, if my opinion matters at all...if it doesn't, don't tell me...I'll be crushed ...anyway, if my opinion matters:

a) I wish you lived in the US too! But I just want you closer! Then I might actually get to hug you in person someday!

b) I really, truly believe that you and your treatment team will find the combo that kills those pesky new tumors too!

Stay strong! Keep believing in the cure...because it's out there!
Sending love and prayers...
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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