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Old 05-01-2013, 12:41 PM   #1
KsGal
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Join Date: Dec 2011
Posts: 585
Re: Applying for SS Disability Bens...after ~11 years

My only advice is to get it completed as soon as you can. I just did this myself back in October. If you are stage IV you will get approved immediately, but there is a five month waiting period before you get your first check, even after you are approved. I was told, and later read, it is because they want to make sure you are actually disabled long term. Seems ridiculous but its true. So get it done as quickly as you can so you can receive benefits as soon as possible.
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Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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Old 05-01-2013, 03:16 PM   #2
StephN
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Location: Misty woods of WA State
Posts: 4,128
Re: Applying for SS Disability Bens...after ~11 years

Dear Jessica -

I say if you have been less able to work then it is overdue! When I said I had brain mets, they put me to the head of the que. I had a direct deposit in my checking account in less than 4 weeks. That was in 2007, so I had not done this as early as I could have.

Hopefully the stage IV with brain mets will move you up past the "bad backs" and that you will get immediate approval without too much delay.

I am sure that no one in that Employment Security office expected me to still be alive and fortunately they were very considerate.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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