TDM1/Kadcyla Experiences

[annmask]

Well I am an Ann as well, and I really need to get my profile up to date on here! I have had noticeable regression in my lymph node size on TDM. Unfortunately my brain scan this week went poorly. The tumor regression I enjoyed while on Avastin/Carbo/Herceptin (a trial) has gone the other way. I have numerous spots in the cerebellum, which had shrunk by 70% with the largest at .5cm. That one is now 2.1 cm, and all the others are bigger as well. I am very upset by this, and really hope to avoid WBR for as long as possible. I have a long planned trip to Paris with my daughter on April 25, and my onc says it is safe for me to go. We will figure out next steps when I return.