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Old 02-23-2013, 11:28 AM   #1
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: Interesting Presentation on Vitamin D

Everyone is different. I am stressing that because I take 4000 iu per day and only test at 46. I am getting more and more convinced that lack of Vitamin D was part of the equation for me. My mom got BC and tested at 0. My sister got DCIS and tested at 0.

My daughters got tested and my 26 yr old tested at 8. She is taking 4000iu per day now but hasn't retested in 2 yrs because of lack of medical benefits but she is probably running ok. Other 2 daughters test in the high 30s but I now make sure they take 1000iu 3X per week.

My cousin also got BC and tested at 0. I am not saying this caused our BC but it might be a factor for some of us. All of us who got BC had bad bones too but since my supplementation program that started after chemo and rads were over (over 8 years ago), my bone density reversed (while on Arimidex no less) to the normal range so I could (and didn't need) to continue on Zometa.

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Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 02-23-2013, 11:37 AM   #2
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: Interesting Presentation on Vitamin D

WOW, Becky, I have never heard of anyone testing for vitamin D at 0 - zero. How could that be? Does your body not process it from either the food you ingest or the supplement? That is an odd family finding.

I have cut back from 2000 IU per day now that I am stable between 60 and 70, which my onc says is sufficient. When I originally tested a few years back the level was 31, with a multi-vitamin supplement, but no other D added.

I just had an analysis, and had thought I would be needing to add in the Carlson's D drops that I do in the winter time. But only once a week right now.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

Last edited by StephN; 02-24-2013 at 11:08 AM..
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