Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

[evlin75]

Finally very good news! Daughter was feeling better after two injections of the higher dose 60 mg, and had a couple really good days last week. Now we have found out the cytology results from last week's draw shows degenerating mastastases type cells in the sample. They draw samples each week during the treatment.

Now the doctor has scheduled 80 mg for the next treatment. He said the degenerating cells shows we are finally getting somewhere.

I am elated that he seems agreeable to upping the dose of herceptin IT to where it needs to go to get rid of the cancer cells.
She is still taking Tykerb but carefully as it does cause some stomach upset. she is also still getting the herceptin and Perjeta in the vein port.

She gets her new Ommaya next week so maybe even better perfusion and less painful sticks. Keep your fingers crossed that his Ommaya port installation and healing goes well this time. They will be installing it in the same well healed area as the one that became infected and abscessed.

This was a GOOD day! May everyone here have some good days too.

Ev