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Re: Calling all stage iv sisters
Welcome Pamjean, so sorry that you had to join us....but isn't great to have this site...the ladies here are so informed and encouraging it is a great place to come for a boost. I have had bone mets since 2005 and been on zometa and herceptin ever since without too many problems...I did end up getting osteocrenosis of the jaw in 2010...but that has been dealt with and zometa is now every 9 weeks instead of 4. I get an echo of the heart (ultrasound) every 12 weeks..I did get a weakened heart muscle (2010)but I went off of herceptin, saw a cardiologist, lost 70lbs, took heart meds and then was good to go..no heart problems since. I have been off heart meds for about 3 months now so we'll see how things go.
Anyway glad you found us and that you have been given hope and encouragement here!
All the best when you start chemo!
Tammy
PS Thank you Jackie for starting this thread!!!
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Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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