ixempra is next chemo

[Pam P]

I may be overly afraid of ixempra. It's just that i've heard the side effects are terrible and I am so vulnerable as it is. I just know it will bring me down to a very weak state. Also from what I've read the success rate of the drug isn't that great.

I know that if this is what I have to do I need to get this negativity out of my mind so I can be positive about tolerance of the drug and the hope that it's helping. I will try to meditate on that I;m just not there yet.

This is the last of the chemos that I have not taken. And if/when this doesn't work I'm at the end. Then I could die waiting for tdm-1 to finally be available. How ironic if i died only days/ weeks before the FDa approval. My onc. has said as soon as tdm-1 is available we're going to jump on it.

I did call Genetech yesterday about compassionate use. They were not willing to discuss with me only said it had to be doctor driven. I called my onc's nurse and explained to her what I wanted. She said she would send it on to the onc. We'll see if he does any pleading my case to them.