|
Re: How do you live well?
Thank you all so much for sharing - I am loving reading your responses and learning from you all.
It seems many of you (and me) live with optimism. I too most days feel amazing and struggle with the idea that the medical experts feel there is so little hope.
My oncologist talks of chronic disease and wow if I can do as well as some of the stage4 women here and those I know personally then there is much to continue hoping for.
For now I focus on enjoying life too but also trying to weigh the benefits in my favor by having the best lifestyle I can and developing my spiritual side too. I am a changed person - I sometimes grieve for my old life without the worry but most times I just live for now.
Thank you for so openly sharing with me.
__________________
Amanda xx
40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis
June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions
Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
|
Hybrid Mode
