HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO DO

[chrisy]

Thank you, friends, for the suggestions and prayers! I must have started to breathe sometime during the night because, well, I woke up. Thank God.


Turtle - great idea, wrong drug, but I like the way you think

KarenZ - dr Rugo was the onc who had the unpleasant conversation with the insurance co. I guess I'm the first patient not first line MBC she's tried to get this for, at least w/my insurance co. I know of one other person ( study buddy) she is planning this for, but she has the option of staying on study to wait things out. I don't so I guess I need tonight hard!

KDR - I emailed Sonali last night; she gave me some phone numbers to try at Gene. But I agree, the least they could do is give me some free samples! I will send you a pm

Mostly, I think that whatever I do, and I WILL do everything I can), Miracles, whether right decisions or new medicines come from only One source, so I'm boldly asking for bold prayers to cicle the globe, for me and for my Her2 family

Much love,
Chris

[jellybean]

Chris,

How infuriating and upsetting! If you get your medical insurance through your job, and your company is a decent size, you might also try having your HR department contact the insurance company. This worked well for me when my insurance company denied an aspect of a surgery I already had. They worked it out without my needing to appeal.

I know others have had this issue with Pertuzumab. There may have been people posting on bcmets.org or breastcancer.org (stage IV thread) with their experiences. A few have succeeded in getting it in the non-first line setting.

Good luck!! With you and Dr. Rugo battling them, the insurance company doesn't have a chance.

I am so sorry about your scans.

JB