HonCode

Go Back   HER2 Support Group Forums > Articles of Interest
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 08-13-2012, 04:49 PM   #1
jacqueline1102
Senior Member
 
Join Date: Apr 2012
Posts: 183
Re: Dense Breasts

Hello Jill,

It seems like we were in the same situation. I hope the link that I posted helps spread the word. There is actually a bill at the federal level which is taking on this issue. I hope others click on the link and support the bill.

Take care,

Jackie
__________________
10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
jacqueline1102 is offline   Reply With Quote
Old 08-14-2012, 10:40 AM   #2
taiga
Junior Member
 
Join Date: Dec 2011
Posts: 3
Re: Dense Breasts

I was in the same situation. I got all 10 of my reports - all were "extremely dense breast tissue". I had 2 mammograms while in treatment for ovarian cancer - you'd think someone would have at least thought maybe an ultrasound would be warranted, but no, got my "all clear" letter. All clear because you can't see anything they are sooooo dense! I had a mammogram in October 2011, felt a rather large lump a month later. My breasts are so dense it didn't show on the diagnostic mammogram and they really had to look for it with the ultrasound, and it was 1"! I'm in MO and they just passed legislation to include verbage on your "all clear" letter that you have dense breast tissue and to discuss it with your physician. I have told many, many people about the website areyoudense.org - a valuable piece of information that needs to be shared with all women getting mammograms.
taiga is offline   Reply With Quote
Old 08-14-2012, 03:36 PM   #3
Becky
Senior Member
 
Becky's Avatar
 
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: Dense Breasts

Me too and I was ticked off my GP didn't tell me. I would have gotten an MRI or ultrasound. I changed GP's after chemo (wanted a doc to see me right away if I got sinusitis or something while on chemo). But - "gosh darn it" I was mad at the dense breast report year after year. Sometimes they said the tissue was so dense they couldn't see anything - go figure.

After my oopherectomy and Arimidex, my breasts are now "see through" - whew!
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
Becky is offline   Reply With Quote
Old 08-19-2012, 01:12 AM   #4
michka
Senior Member
 
michka's Avatar
 
Join Date: Feb 2007
Location: Paris, France
Posts: 858
For everybody in fact.

I also had mammograms every year since I was 40 due to family history.
I was always told that my mammograms were very easy to read because my breast were NOT dense. I did not know at the time that mammos are not always reliable and that the best was mammo+echo+MRI. I would have done that. For years I heard Drs saying that mammos were reliable and they only had a 1 ou 2% problems. Now, at last they admit 15%. It is not a question of reading competency. Some tumors just don't show on one or another type of machine. The real breakthrough would be an improvement in one of the technologies (hopefully in MRI because no radiation).
So yes dose dense breasts need MRIs but don't leave out the other ladies.Give them the choice.
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
michka is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is On

Forum Jump


All times are GMT -7. The time now is 04:55 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter