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Old 07-07-2012, 08:15 PM   #1
Vicky
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Join Date: May 2011
Posts: 137
Re: Extreme fear of mri's

Hi Dixie,

I had no idea I was claustrophobic till I was in the tube! I now have sedation for my MRI's and get anywhere from 2-3 xanax about an hour before the test depending on how long it will be. They put a washcloth over my eyes, and they also talk to me telling me how long each segment will be. I am just barely awake and I do just fine. They have told me they can do anesthesia if they need to. But the one time I needed a long test, we just broke it up into two sessions on two different days. They will work with you!
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3-16-11 dx IDC 4.4 cm tumor, right breast,HER-2 neu 3+++, Stage III
3-25-11 PET scan shows 3 mets to liver and 1 to spine, Stage IV
4-12-11 start clinical trial of TDM1 infusion 1x every 3 weeks.
6-14-11 CT scan after 3 cycles shows NO liver spots, reduced spinal met from 18mm to 13mm and right breast mass from 4.4 to 4.2 cm.
8-12-11 Mastectomy rt. breast.
10-11 scans reflect stable cancer
12-11 MRI reveals area of concern in brain, CT scan reveals 3mm spot on lung. Watch and wait and rescan in a few weeks. Round 13 TDM1 complete.
2-21-12 Scans reveal progression in lungs with 4 new small mets. Officially off tdm1. Start halaven and radiation for single brain met, 1 spot in spine.
3-13 stereotactic radiosurgery for single brain met.
5-31-12 Halaven stopped due to low blood counts. Start tamoxifen and cont. Herceptin 1x3 weeks.
7-11-12- brain mri shows shrinking brain met and no new lesions. Cont. Herceptin and Tamoxifen
10-2-12 Stable tumor markers. Continue Herceptin and Tamoxifen
4-9-13 progression in lymph node under arm and new lung spots. Stop Tamoxifen. Add Xeloda to Herceptin.
6-10-13 Stereotactic radiosurgery to two new brain mets. Stop Xeloda due to lung mets progression. begin Tykerb 7-2-13.
10-29-13 Begin radiation to my lungs and one lymph node under my arm. Stop Tykerb until completion and then recommence.
1-31-14 Progression in lungs. Oophorectomy performed.
2-18-14 Begin Arimidex and continue Herceptin
7-7-15 progression with spots on colon, in pelvic region, and in lungs. Begin Taxotere, Perjeta and Herceptin.
11-15 Switch to weekly Taxol, and continue with Perjeta and Herceptin.
12-23-16 PET scan shows Complete Response with no new spots. Continue on with TPH indefinitely.
3-16-16 Still no evidence of disease, break from Taxol. Continue on with Perjeta and Herceptin.
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Old 07-08-2012, 09:06 AM   #2
Lani
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Join Date: Mar 2006
Posts: 4,783
Re: Extreme fear of mri's

back in the mid 90s I had an MRI at a facility that was using virtual reality glasses in their MRIs, not just for claustrophic patients

The glasses allowed you to watch TV on a screen which was located parallel to the bottom of your feet outside the tube. I watched a cooking show on PBS and had no feeling I was inside a tube. Perhaps you should ask your facility if they have those virtual reality glasses left over from those days (most facilities stopped using them as they found there were fewer people who wanted them than they thought there might be) or seek out a facility that does!

Hope this helps!
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Old 07-08-2012, 12:57 PM   #3
Delaney
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Join Date: May 2010
Location: Ireland
Posts: 271
Re: Extreme fear of mri's

I am slightly claustrophopic and have never been offered a sedative. One oncologist suggest a glass of wine!
I love the tv idea, had never heard of that being available.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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