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Re: TDM-1 news
Congrats FOB !! Did we talk about the platelet issue before ? Lorraines dropped from the beginning, from over 200,000 at start to about 90,000 after 3-4 doses at 3.6 strength. She got 3 more doses at that strength , total of 7. In Hindsight probably should have cut back a bit earlier , after 4-5, depending on plat level. But we didnt know , went on, and plats went to 40,000 after 7 doses. ( had a sepsis issue from old stents in April, 2011, , but that was a unique problem , did drop her plats to 29,000, briefly. didnt help, but speaks to these steps as having good results to come back from there. ) Switched to 3.0 ( every 3 weeks ). And barely hung on , but plats gradually rose starting last July , to 80,000 last week. In May, Lorraine started diet changes sharks liver oil, chlorophyll at health food store, 1,000 mg folic acid, green leafy veggies, spinach , sweet potato, good quality red meat 7 days , and 4 days prior to tx. ( plats have a life in body of 6-8 days ). We favor Porterhous e steak asit has fat in it, roast beef. If your bone marrow is under attack, you have to be a bit of a cavewoman ! Brisk 15' walk just before blood draw ( tip from a Gen. doc ), regular light exercise, regular rest . Doc says not having bone mets may have given L. more bone marrow reserve,
l Its working ! Starting 18th month today ! Good luck !
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