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Re: OH what to do???
thank you all for your support it seems to quite a tricky thing to get rid of. So far I'm having radiation which my onc said he could get a great result and get rid of this. I only have three rads left and to be honest i not sure i believe him. The symptoms come and go i have blurred vision in morning sometimes a sore back (spine) and feeling sick and lost wanting to eat and blocked ears. And of course this makes you feel down. Thank you Rolepaul as your info from you was very helpful. My is the leptomenigeal mastitis in the menages. I'll keep you posted as to what we do next.
Luv to all
Jacqui
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Oct 2009 Masectomy 6 cm Tumor . Sentinal node biopsy , Node Positive . Her2 + er/pr -.
Nov 2009 X3 Taxane and Herceptin, X3 FEC
March 2010 25 Rads
March 2010 continued on Herception untill 16 Dec 2010
May 2010 Ultra Sound .... ALL CLEAR... NED
August 2010 started vaccine trial University of Washington
7th Dec 2010 finished vaccine trial
20th Dec 2010 Port removed
3rd Feb no longer ned brain mets
23r Feb start VMAT radiation
August 2011 two new mets to brain and others starting to grow again !!!!
August start tykerb and xeloda
Dec 1 MRI all small brain mets gone. Largest shrunk by 50% only three small ones to go 17mm,8mm,6mm. Mets on there way out. Yeah
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