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Old 02-06-2012, 08:24 PM   #1
WayTooYoung
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Re: Anyone on TDM1???
Hello Phil,

Thank you for sharing your wife's TDM1 experience with me. So far, I have heard nothing but good things about it so I feel pretty good about it. I really hope that this drug works for me because I have my whole life ahead of me to live still...just sucks I have to deal with this again. Been so hard trying to juggle this with work...

Thanx again
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Feb/2010-Diagnosed with IDC ER+, PR+, Her2+++(age 28)
Mar 2010- 6 Rounds of FECT (made me sick as a dog)
Jun 2010- Finished chemo
Jul 2010- Mastectomy +12 lymphs (4+)
Oct 2010- Radiation/Begin Herceptin (Her2 was overlooked by my Onco!)
Sep 2011- End of Herceptin
Nov 2011- Recurrence-->Chest Wall, muscle, and possible lymph (ER+, PR-, Her2+++)...WTF!!!???!!!
Feb 2012-Randomized for Clinical Trial
Feb 2012- Begin blind study either TDM1 w/Pertuzumab or TDM1 w/Placebo Pertuzumab
Jan 2013-2nd Recurrence, off TDM1...what next?
Feb 2013-chest wall resection
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Mar 2014-Surgeon fr/dif hospital confirms lung metasis based on review of CT scan from Nov...Onc recommends Aromasin/Affinitor...
Apr 2014-Start Herceptin+Vinorelbine
Sep 2014-New pain in lower back, MRI confirms metastasis
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Dec 2014-Restaging confirms two new nodules to lungs and lower spine :(
Jan 2015-Xeloda and Tykerb (good response)
Aug 2015-Xeloda/Tykerb not working...Dr wants to try Taxol/Herceptin combo...problem, Herceptin not covered by OHIP
Sep 2015-Begin Taxol continue Xgeva
Oct 2015-Add Herceptin
Nov 2015-CT stable but MRI shows new mets to spine :(
Jan/Feb 2016-Start Erubulin (Halavan)
May 2016-Progression...Stop Erubulin
June 2016-PMH to explore Clinical Trial options...consideration for Immunotherapy
July 2016-Screening for Trial...Still without treatment, experiencing low appetite, low energy, pain, and rapid wieght loss...cachexia???



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Old 02-20-2012, 09:08 PM   #2
Jackie07
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Re: Anyone on TDM1???
N,

Just saw your thread - how did your first infusion go? Below is a thread on the hair thinning issue of T-DM1:

http://her2support.org/vbulletin/sho...ighlight=T-DM1

You can look up threads about T-DM1 (use the 'Search' button on top - try both T-DM1 and TDM1; there's also one called 'T-DM!') to find more members who've been on T-DM1. There's a 'calling all stage IV sisters' thread where you can find a chart listing treatments each member has used.

You can then go to 'Members List' and locate past postings of each member.

Sending you good vibes.
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Old 02-20-2012, 09:18 PM   #3
her2 newBEE
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Re: Anyone on TDM1???
Hi WayTooYoung,

Can I ask a question about your trial? I have not seen many current T-DM1 trials now that do not have the addition of another chemo agent (Taxol, Navelbine, etc.). Is this also the case for your trial? Or are you really just getting T-DM1 + Pertuzumab/placebo? I would imagine that a Taxane would be part of the control of this study?
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