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Old 01-31-2012, 02:39 PM   #1
Delaney
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Join Date: May 2010
Location: Ireland
Posts: 271
Red face Re: Aclasta (Reclast) infusion tomorrow

My Doctor advised me to take calcium with the D3 and prescribed Calcichew D3 Forte. Two chewable tablets daily. Very easy to take, lemony flavour.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 01-31-2012, 04:56 PM   #2
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: Aclasta (Reclast) infusion tomorrow

I was on Zometa (same drug different name) and I did not take Tylenol (a great suggestion by your doctor) and I did get a fever the next day - I felt like I was getting the flu. I felt funky that next day - tired and weak and feverish. But the day after that, I was completely fine. So, with the Tylenol, who knows but I suppose if you plan on feeling funky and don't, all the better. The funkiness doesn't last though.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 01-31-2012, 05:39 PM   #3
caya
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Location: Thornhill, Ontario Canada
Posts: 2,320
Re: Aclasta (Reclast) infusion tomorrow

I had the Aclasta infusion today - the whole deal took about 45 minutes.

I feel tired, a bit of a headache, nothing major. I'm drinking lots of water, and following the dr.'s Tylenol schedule.

I take 4000 U of Vitamin D3/day, as well as 1500 mg. calcium (along with various other things). Vitmain D3 levels up here in Canada must be measured differently, as mine was 101 - the endocronlogist said you want to be between 75 and 200.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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