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Old 12-31-2011, 02:14 AM   #1
Delaney
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Join Date: May 2010
Location: Ireland
Posts: 271
Re: Update from me - C-Diff Colitis

Wow, well done on coming thru all that, you are one strong lady! I was tested for cdiff during my last hospital stay, cant believe now how unworried I was about it. Wishing you all the best.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 12-31-2011, 03:16 AM   #2
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Update from me - C-Diff Colitis

Dear CoolBreeze, what a horrible experience! I am so happy you were able to pull through but I can imagine the suffering. Wow, a liver resection and after that.You are a strong Lady.
I knew you could get infections in the hospital but I didn't know it could be linked to antibiotics. I had no antibiotics after my liver resection. In fact in France they don't give you antibiotics each time. They watch you closely. They are trying to cut down on the use of antibiotics to keep them active. I don't know if this is a good strategy.
I hope you will feel better fast now and that you will not loose your job. I lost my job so I know how important it is. I wish that you will leave all these problems behind you in 2012! Hugs. Michka.
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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Old 12-31-2011, 05:18 AM   #3
Paula O
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Join Date: Jul 2011
Posts: 954
Re: Update from me - C-Diff Colitis



Dear CoolBreeze,

My heart goes out to you. ((Hugs))). I am so glad that you are doing better. What a nightmare.

Years ago my husband had a terible time with Recurrant C Diff (not as bad as you though) and I genuinely thought that I was going to be a widow.

I just looked up a reference to a JAMA article re: pulse dosing Vancomycin in case you are interested in looking into it.
http://healthywithin.blogspot.com/20...nt-c-diff.html

There was a newsgroup made up of people with horrible cases of C Diff that we found which was a wealth of information to us. I just poked around for it but didn't see it. I will ask my husband if he can remember and if he can, I'll get back with you as it may be helpful to you too.

Are you doing copious amounts of probiotics to repopulate your intestinal tract with healthy bacteria?

Cheering you onward, CoolBreeze and just prayed for you,

Paula
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