Update on the Journey for NED

[karen z]

I am sorry to hear you have been in pain and hoping you can get a new plan very very soon- and go with it. I am thinking of you and sending strong wishes and prayers your way. A cure is not too much to ask for and we need to keep pushing every day. One of the major docs at San Antonio told the patients/patient advocates to keep pushing to be heard- and keep pushing for more research. He said that we would be the most effective at making things happen. So we will continue to do that. And I agree with Steph- let hubby help (it is good for him) and rest up and gain as much strength as you can.