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Old 10-28-2011, 11:28 PM   #1
dawny
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Join Date: Oct 2011
Location: Geelong, Australia
Posts: 250
Herceptin for only 12 months?
Hi
I have been told that I will be on Herceptin for the rest of my life, or until it stops working. I have noticed that most people here say they will be on it for 12 months only? Is my onc just super cautious?

Thx

Dawn
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Dx May 27 2011, age 43
Stage 1V 3.6cm breast lump, spot on lungs, nodes chest + neck
HER2+ ER/PR-
Abraxane weekly - 16 weeks
Herceptin every third week
September 26 2011 N.E.D!
Herceptin ongoing
8th Dec 2011 Brain MRI - clear
20th Dec 2011 bone/cat scan clear still NED
April 2012 scans show axillary node lump - ? what to do...
June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly
April 2013, two spots in nodes to chest wall, start TDM1 (Kadcycla) as part of clinical trial
July 2013 stable
Oct 2013 progression off TDM-1 (Kadcycla)
Nov 2013 radiation to lymph nodes in sternum
Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 (Kadcycla) didn’t work!
April 2014 NED. On Herceptin only
August 2014 NED. On Herceptin only
March 2015. NED. On Herceptin only
September 2015 NED on Herceptin only
March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only
Nov 2016. Bone Mets in ribs - Radiation. Don’t know if bone Mets are er-/pr-/HER2+ or triple negative.
Can’t give self injections on to tablets (Xarelto) for blood clots.
2017 NED - On Herceptin only
2018 NED - On Herceptin only
2019 NED - On Herceptin only
2020 NED - On Herceptin only
2021 NED - On Herceptin only
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Old 10-29-2011, 12:05 AM   #2
Jackie07
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Re: Herceptin for only 12 months?
Hi Dawn,

The standard treatment protocol these days for Her2 breast cancer is to have Herceptin for 12 months. Most stage IV sisters (see list on posting #118 of the thread below)
http://her2support.org/vbulletin/sho...+stage+sisters
have been on it 'indefinitely' - continue to get the 'Vitamin H' until both they and their doctors agree to stop. (Usually over heart function issues/concerns.)

Have you met other Australian sisters here on the Board? There are some unique issues being discussed in the thread entitled 'Australian Treatment and access' http://her2support.org/vbulletin/sho...ght=Australian Thought you might like to check it out.
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Old 10-29-2011, 01:07 AM   #3
dawny
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Join Date: Oct 2011
Location: Geelong, Australia
Posts: 250
Re: Herceptin for only 12 months?
Thank you so much for your reply Jackie, and also for the thread, which is great for all stage 1V people, to read.

Also for the Aussie forum, it is good to know what is available close to home, although I wouldn't mind a trip, somewhere, anywhere!

Take care

Dawn
__________________
Dx May 27 2011, age 43
Stage 1V 3.6cm breast lump, spot on lungs, nodes chest + neck
HER2+ ER/PR-
Abraxane weekly - 16 weeks
Herceptin every third week
September 26 2011 N.E.D!
Herceptin ongoing
8th Dec 2011 Brain MRI - clear
20th Dec 2011 bone/cat scan clear still NED
April 2012 scans show axillary node lump - ? what to do...
June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly
April 2013, two spots in nodes to chest wall, start TDM1 (Kadcycla) as part of clinical trial
July 2013 stable
Oct 2013 progression off TDM-1 (Kadcycla)
Nov 2013 radiation to lymph nodes in sternum
Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 (Kadcycla) didn’t work!
April 2014 NED. On Herceptin only
August 2014 NED. On Herceptin only
March 2015. NED. On Herceptin only
September 2015 NED on Herceptin only
March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only
Nov 2016. Bone Mets in ribs - Radiation. Don’t know if bone Mets are er-/pr-/HER2+ or triple negative.
Can’t give self injections on to tablets (Xarelto) for blood clots.
2017 NED - On Herceptin only
2018 NED - On Herceptin only
2019 NED - On Herceptin only
2020 NED - On Herceptin only
2021 NED - On Herceptin only
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Old 10-30-2011, 04:35 PM   #4
tricia keegan
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Posts: 3,463
Re: Herceptin for only 12 months?
Hi Dawn,

The 12 months is usually for early stage with no mets but do hope you do well on herceptin and get back to NED asap!
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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