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Old 10-26-2011, 06:35 PM   #1
patz64
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Join Date: Oct 2011
Location: New jersey
Posts: 24
Re: Chemo protocols

Thanks Kelly,
So yesterday was my first day of chemo. It wasn't too bad. The premeds (benadryl and adivan) made me really tired, and I slept for about 2 hours while there. When they first poked me in my port it really hurt, but another patient was having her port removed so she gave me her lidocaine cream to use next time so it won't hurt as much. Today i had some mild stomach cramping, but no diarrhea or constipation. I wasn't able to get the neulasta injection today because I had an appointment with my pulmonologist so I am getting it tomorrow morning. Besides the stomach cramping, i just feel a little bit tired, but not too bad.
Also, on Monday I went to a local Breast Cancer resource center and got a free wig, hat, and night cap, so at least now I feel a little more prepared for what's to come.
When you lost your hair, what kind of soap did you use on your scalp?
Congratulations on being 7 months out of chemo!!!!!
Pat
__________________
6/2007-stereotactic biopsy: stage 0 carcinoma L breast
6/2007-partial mastectomy, L breast: stage 1 invasive carcinoma, estrogen +
7/2007- Removed sentinal lymph nodes....all negative. 33 radiation treatments, followed by tamoxifen
5/2011-stereotactic biopsy: stage 0 carcinoma L. breast again, estrogen/progesterone negative. Nobody used the words Her2+ yet.
8/18/2011-travelled to Texas (I live in NJ) for bilateral mastectomy and reconstruction with DIEP flap. 3 days later, left breast turned blue...had emergency surgery to unclog vessel and try to save the flap. 24 hours after that, had another emergency surgery... took a vein from my left arm and re-routed it to the breast. Saved the breast flap but went into congestive heart failure because of all the IV fluids. Spent 10 days in ICU...8 days on a ventilator. Traumatic experience!!! Then was told it was actually Stage 2, Her2+, and I would need chemo.
Now back in NJ.
10/11/11-port was placed
chemo starting in about 2 weeks
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Old 10-27-2011, 07:03 AM   #2
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Re: Chemo protocols

Pat, My sister is on the exact protocol as you, only she is getting 6 rounds and Herceptin for a year. She gets steroid pills the night before and the day of, and has to take Benedryl IV right before....she has done amazing...had her 3rd treatment yesterday, continues to work full time. Her hair began to fall out day 17...so we cut it short, within another week, even the stuble was gone....she does still have her eyebrows...i am so jealous!!! Hoping this combo will be kind to you as well....she uses EMLA cream to numb the port....ask the nurse for a script. She also gets Neulasta the day after....she is on a 3 week schedule for the chemo.

Thinking of you~~
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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