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Old 10-17-2011, 08:41 AM   #1
Barbara2
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Location: South Dakota.
Posts: 621
Re: Metastatic Breast Cancer and Nancy Brinker

Hi, Amy,
Thank you for taking the time to articulate your thoughts in a way that has so much meaning and understanding for all of us. When reading your message, I kept thinking...hurray... someone who is addressing the hard to talk about topics and facts, and has expressed it so well.

It seems that breast cancer is glossed over for the public and the real message and concern about this cancer gets lost because we tend to hide undesirable truths. It's a hard concept to balance. We don't want to sound negative, but yet at the same time people need to know and understand cancer's realities.

When I was diagnosed, I asked my onc what my survival chances were. He told me, but what I didn't realize until much later...sometime after chemo and when my brain started working again...was that he gave me a 5 year survival rate. If he told me "5 years," I do not recall it.

When Mrs. Edwards became stage 4, the news programs had on doctors and guests that were specialists in the breast cancer field, and it seemed that all of them skirted around the truth. It sounded like she was fine, and always would be.

Your message has been much appreciated.
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Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
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Old 10-17-2011, 09:49 AM   #2
AlaskaAngel
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Location: Alaska
Posts: 2,018
Re: Metastatic Breast Cancer and Nancy Brinker

Thanks for making so much sense in this thread.

At the risk of being redundant, please consider the efforts of this nonprofit organization for working together to produce something real for breast cancer patients and to educate others:

http://www.affinityfilms.org/our_wor..._war/index.php

-AlaskaAngel
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Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
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