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Old 07-20-2011, 11:58 AM   #1
snolan
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Join Date: May 2011
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Re: Herceptin Weight Gain?

I had a weight drop at the time I started the Tamoxifen but I also stepped up my workouts, switched to cross fit 3x wk and during the summer months I can add an addition bike ride in on Sat. But my Dr did warn me that most people tend to gain some weight. Some may be due to the hormone changes our bodies are going through but for some it may be more psychological and how they are responding to the whole cancer situation. They may be eating more exercising less.

Like you mentioned it may be the change in your diet as your body gets used to it. If you have changed your workout you may be experiencing a change in that as you lose fat and gain muscle the lean muscle weighs more. Something to think about.
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dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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Old 07-20-2011, 02:33 PM   #2
Jackie07
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Re: Herceptin Weight Gain?

A lot of people reported Herceptin weight gain in the following discussion at another forum:

http://community.breastcancer.org/forum/80/topic/729000
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http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
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Irrtbl bowel 1'09
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DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
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Old 07-24-2011, 10:05 AM   #3
Cam
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Join Date: Jul 2011
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Re: Herceptin Weight Gain?

Thank God for yoga pants!!! I gained almost 20 pounds during my Taxol/decatron 3 months. Finished Taxol end of March. I am now on a every 3 week Herceptin treatment. I started Jenny Craig, lost about 8 pounds in 4 months, not too encouraging. Started Arimidex and my doctor told me it won't make you gain but will perhaps make it harder to loose. I lost all my enery while on Taxol and am finally feeling a little better, but I have shortness of breath. I try to walk and work with light weights for upper body as much as I can. I have my 6th of 13 Herceptin only treatment on Friday. You girls give me hope that perhaps its the Herceptin also making weight loss a bit harder. Its hard enough going thru this but hair loss and the weight gain too!!!!
Good Luck Everyone

DCIS LB in 2000 had lumpectomy
Stage 1 RB 2010 had double mastectomy
ER PR HER2 positive
Right expander had to be taken out before chemo due to infection. Replaced in June so I'm going for my fills. Not sure when the transfer will occur.
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