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Old 03-06-2011, 09:43 AM   #1
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: second primary breast cancer

The main problem with MRI is that it finds a whole bunch of things. I want to get one but my radiation onc warns that "I could open Pandora's box" for nothing. Like you, I had no previous baseline and I have had cancer on the right and 2 surgical biopsies on the left so I am sure both breasts would show nothing but a big ole mess on MRI.

Like you are going through now, anything that can't easily be explained has to be investigated (opening Pandora's box) because it would be remiss just in case it is something.

Also, even though common things like cysts and FA's seem to be for younger women, this perimenopausal time is when the hormones are a really mess and cause alot of havoc in our bodies. Naturally the breasts are a place for the action of hormones can be evident.

False positives can only be ruled out via biopsy. Keep the faith and I will be thinking about you!
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Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 03-06-2011, 10:48 AM   #2
BonnieR
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Posts: 2,210
Re: second primary breast cancer

Like Becky said, Pandora's Box can be a troublesome thing indeed. I hate bore everyone with my story again, but it is a cautionary tale. Basically, I had a chronic cough and I lighted up some lung scans. The next thing, I was having a surgical biopsy which was positive for lung cancer so they removed a lobe of my lung. A few days later, I was told it was all a big mistake and the biopsy was wrong! It was just an old pneumonia.
My point is, scans can "over read" things but once they do, it has to be followed up. And then people can get overly vigilant because they dont want to miss anything.
I think this is part of the argument why routine scans can be as much of a problem as they can be of help.
The other part of my message is to keep the faith because even when things look grim they are not always what they seem, at all.
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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