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Old 01-09-2011, 10:16 AM   #1
Becky
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Location: Stockton, NJ
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Re: To talk of Ports, and markers and DIEP

Hi Leslie!

Soccermom also had delayed DIEP reconstruction as well and as Joan said, Mary Jo also had delayed diep.
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Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 01-09-2011, 12:23 PM   #2
Mary Jo
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Re: To talk of Ports, and markers and DIEP

Hi Leslie,

Yes, I did have bi-lateral DIEP reconstruction 3 years after my initial surgeries. I am assuming from reading your signature and from your post that you are having uni-lateral reconstruction.

I did not find DIEP to be as bad as I had anticipated it to be or from reading the comments on breastcancer.org from other women who had uni-lateral or bi-lateral DIEP. Don't get me wrong, it isn't a "walk in the park" but not as bad as I thought. However, saying all that, my surgery went perfectly. Surgery, recovery and post-op. Going into the surgery I was healthy and in good shape...so that probably helped or surely didn't hurt.

The 2nd phase of the surgery, the revision phase, is done at a later date. They will lift your other breast (if having uni-lateral) at that time and do whatever other revisions need to be done. I didn't have my revisions until 1 year after the initial surgery but you do not have to wait that long.

Any other questions just ask.....also, if you'd like my phone number to talk so we can talk that way, please feel free to ask.

Happy to help....

Mary Jo
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 01-09-2011, 09:06 PM   #3
fauxgypsy
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Re: To talk of Ports, and markers and DIEP

It would be unilateral. I thought at first that I would not be doing this. It might be some time between the DIEP and the revision. I am fitting this in around the college schedule and then there are the classes that I am taking. It was good to hear that you had a good experience. It sounds like most of yall have been happy wit the results. Thanks. Mary Jo, it might be helpful to call you. I am not going to have the surgery until July ( I am teaching first summer semester) so ther is no hurry.
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In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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