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Old 12-29-2010, 10:45 PM   #1
Sherryg683
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Re: Lymphodema

Five years later,I have developed lymphedema in my right forearm about 2 months ago. It's what they say is a mild case but it's definately swollen and my hand swells. I am doing therapy, purchased the newest, hot off the line, just FDA approved compression pump and have compression sleeves that I wear all the time except when I'm going out somewhere special. I still am able to play tennis but I am really bummed that this happened this late in the game. I believe it was brought on by a massage I got. Dumb me let them massage my arm and that day, I noticed it swelling...so NEVER let anyone massage your affected arm. I have had previous massages that never caused it to swell, I guess I figured I was immune to getting it...very stupid of me, I must say.
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Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 12-31-2010, 05:45 AM   #2
Sheila
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Re: Lymphodema

Peg
I developed lymphedema this year...8 years after diagnosis! I do have mets to my axillary nodes, and chest, neck etc. I also wear a sleeve and glove during the day, but not at night. I am going to go for therapy..have just not felt like it lately. I did find some amazing sleeves that my insurance covered....they are not the normal medical ones, they were designed by 2 girls with breast cancer. Here is the website:

www.lymphedivas.com
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Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 01-01-2011, 09:47 PM   #3
custom
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Re: Lymphodema

what kind of compression pump did you get? I heard Flexi Touch was good.
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