Brain Rads Tykerb not feeling great

[ElaineM]

I don't have any solutions for you, but I stopped by to say hang in there and take good care of yourself.

[Delaney]

mjones, have you been dealing with lung mets for 15 years? You are understandably feeling low after 15 yrs and then to have it come back like that. I find tyverb very tolerable, maybe you will begin to feel better soon, I would think its the shock of what you've been thru rather than tyverb that has you feeling low. You will get good advice here. hang in there. You could check up Courtney's posts. She is an inspiration. Check out what she says about Boswellia.

[StephN]

Dexamethasone has all sorts of side effects, which are not light ones. When I took it, I had appetite, sleep disturbances and there is such a thing as a steroid "crash." Also, weakness in your legs which takes a while to build up from.

I experienced all those myself. Work on your eating to gain strength, and try to walk a little more each day. Between the brain zaps and the dex, what you are feeling is to be expected. Although the docs don't usually tell you that!

BTW - congrats on a long life since diagnosis!