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Old 09-03-2010, 10:13 AM   #1
ElaineM
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Wink Re: PET/CT results good! next step?
I hope the cat scan is negative for a blood clot or any other problem. Take good care of yourself. I know you are doing your very best, but I always wish people that.
Smile.
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Old 09-03-2010, 05:43 PM   #2
Chelee
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Re: PET/CT results good! next step?
Pam,
You have certainly dealt with more then your fair share of side affects..my heart goes out to you. I'm so sorry to hear your now dealing with swelling in your arms. Like you didn't have enough to deal with. I sure hope this CT rules out a blood clot...yet gives them a clue as to what might be going on? I can only imagine the anxiety this is causing you.

You had mentioned having acupuncture. I remember reading that it hurt and it's really not suppose to from what I've been told. (But I'm no expert in that area.) But do you think the person doing your acupuncture could be possible putting the needles in too deep therefore causing swelling? (Just a thought?) I don't remember if you said you were having the needles placed in your arms? Maybe you should temporarly stop that until they figure out what's going on? Please keep us updated...I'll be keeping good thoughts for you.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 09-03-2010, 07:02 PM   #3
Jackie07
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Re: PET/CT results good! next step?
Pam,

I just read your old postings about your Chinese medicine prescription. If you can take a picture of the Chinese words and either post it on the Board or e-mail it to me, I can translate them for you and possibly do some research on the ingredients.

When my Mother did acupuncture treatment for her hand (arthritis?) 30, 40 years ago, she had bruises from the needles quite a bit. You really need to be careful not to get it on your 'bad' arm and also not to ruin your good arm.

Sending you good vibes.
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Old 09-11-2010, 07:14 AM   #4
Delaney
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Re: PET/CT results good! next step?
Pam - I wish you the very best with your treatment, you sound tough enough to take it.

Rich - Why should Pam not drink coffee, even decaf? I did a search here and coundnt find any reason to not drink coffee while on treatment except some people get bad diarrhoea , but Pam didnt seem to suffer from that. I am er- /pr- and love coffee (3 cups a day). Do I need to cut it out?
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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