Would like to speak to someone with lymphedema

[vlcarr]

Sorry it's taken me so long to get back to this. I still have some folks to call but haven't gotten around to it yet.

I went back to work for 4 hours a day but get to work from home which is awesome. When I started back to work I started getting swelling in my hand and now I've developed some in my chest wall.

The glove they ordered for me just did not fit right. I have short, stubby fingers so today they fit me for a custom one--hopefully that will not make my fingers turn blue.

I'm trying to avoid typing a lot at night since that seems to make my hand worse so that's one reason I'm behind on my posts. Please know that I appreciate everyone who sent me a message from this post. I do so want to talk with you but it's been crazy lately with work, pt and going back & forth to the boob store for various items.

Today I got the Solaris sleeve to wear at night and I also had to get new bras that have more support and are wider on the side as I have swelling there as well. No more pretty bras for me. She said I may be able to get back in those in a year My therapist also wanted me to get a swell spot that I have to put inside my bra--man, I just feel that I have stuff stuffed everywhere!!!

This horrible heat is just making me more miserable with all these garments but I want to be as proactive as I can because my swelling is not bad and I don't want it to get that way.

Will wear the night sleeve for the first time tonight and the fitter said I should be able to tell a huge difference. I'm still doing pt 2 days a week.

They are working on my alignment which they say is way off. They feel a lot of this is due to my neck surgery which I was still in pt for when I found my lump last year. I also just started getting some massage therapy on my own to try and help with the neck issue.

Unless this improves I've decided to not get reconstruction next year because I don't want to make this worse. My surgeon insisted I wait a year from radiation so I have until May of next year before I can consider anyway.

Just wanted to give you all a quick update as to where I'm at right now. Thank you all so much for your continued support!