Trying not to panic

[Pam P]

I got a call from the onc. nurse today. My last ca2729 is up 400 pts from last month! A pretty good indicator that this current treatment is already not working.

I'd been on xeloda/tykerb/herceptin/aromosin/zometa since April. At first a drop in tumor markers, then last monlth a 90 increase & now this.

I had a pet scan in early July which showed stable so that's good but obviously something not good is going on.

I don't see the onc. until Aug. 19 and am going in for another tm test a week before that. I suspect my onc. will want to switch treatments. I don't have many options left.

Of course I'm interested in t-dm1 and see from the other thread that it's in Cedar Rapids IA. I live in Minneapolis and I guess that would be the closest for me. How do I start the process of seeing if I could get accepte there?

On the t-dm1 thread I read (by Sheila I think) that it only works for 25% of people! That's depressing - I hadn't heard that before.... even though this is supposed to be a great drug those are such low odds.

For over the last year or more I've been on chemos that I'd had success with in the past: xeloda, navelbine, taxol --- none have worked for long and didn't do nearly as well as the 1st time I had them. Abraxane and ixempra I think are the only ones I haven't had.

I hate this so much and feel so deflated today. "Funny" how one can be having a routine day and a phone call like this can send everything spinning. Now the wait until Aug. 19 to learn what's next.