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Old 07-23-2010, 02:09 PM   #14
jml
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Join Date: Dec 2006
Posts: 415
UpdateRe: Anyone applied/enrolled in TDM1 EAP?

Thank you everyone for your cheers & encouragement.
After the disappointment of not qualifying for the last TDM1 trial in Indianna, I've been holding my breath as I've waited to hear back from the folks in Nashville.
The good news is I just spoke w/the research nurse and she's reviewed my records and based on that information, I should qualify for the study.
I have an appoinment to consult with the research doc & screen for the study on August 3rd. Once I've signed the consent form, they'll order another echo and a CT to get accurate measurements of the mets. God-willing, I will be able to start drug on August 10th.
I'm still feeling cautious however. Hoping an praying that the results of the echo and CT don't hold any surprises that would prevent me from getting into the study.
We'll also be watching my cbc's closely in the next two weeks, to make sure my counts don't drop so low that I would need another transfusion, because that could cause a problem too.
So, everyday I'm feeling better and stronger now that I've been off Ixempra for over 2 weeks and that's encouraging. The challenge is trying to stay relaxed and positive for another 2 weeks as I wait to screen for the study.
Vicky-thank you for your sweet and generous offer. Hopefully we'll have a chance to meet, as I hope to be coming to Nashville every 3 weeks for the TDM1. It sounds like you're doing well, and I'm so happy for you!
Thanks everyone again for the support. You have all made this journey a little less bumpy with your kindness~

Keep the Faith~

Jessica

Last edited by jml; 07-23-2010 at 02:11 PM.. Reason: typos
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