Neratinib Clinical Trial

[Savta]

I don't think it means anything just yet. Some of the women didn't feel anything for the first few days. I also read in Wyeth's website, that 15% of the women taking the drug didn't get diarrhea. Maybe you're in that 15%. Or maybe you are in the placebo group. Keep in mind. No matter what group you're in, you are contributing to the trial. The sooner they get the data, the sooner it gets to the FDA. Then we'll get the benefit.
Good luck--and mainly---stay well!

[freyja]

I too started just yesterday evening and no obvious side effects, yet. Hope it doesn't happen in the middle of ballet class tomorrow! I share the mixed emotions with you all. I never wanted to get diarrhea before, but I might be happy to see it this time!
Regardless, happy to help a trial like this.
Celeste

[EvansMommy]

Well, it's been five days now, and no side effects. I know that not everyone who gets the drug has side effects, but I doubt I am that lucky!

Oh, well, I'm probably on the placebo. That's ok - at least I am helping out, right? I feel very lucky to have had a complete response to chemo and to still be NED almost 3 years after being diagnosed, and I am thankful to be able to be part of a trial that might wind up helping a lot of other women in the future.

Of course, I am still holding out hope that the diarrhea starts soon. Haha!